CurePSP announced that its network of Centers of Care has grown to 38 institutions with the addition of the University of Colorado Anschutz Medical Campus, University of Texas Health Science Center at San Antonio and University of Washington School of Medicine.
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The foundational program advances regional and global leadership in comprehensive care delivery and innovative research for the neurodegenerative diseases of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA).
“The vulnerability of living with a medical condition is often exacerbated for those navigating a rare and quickly progressive disease like PSP, CBD or MSA,” said Jessica Shurer, MSW, LCSW, director of clinical affairs and advocacy. “With each addition of new perspectives and energy to the CurePSP network, we expand our capacity to foster person-centered care, disease-specific resources, tailored community outreach and opportunities for clinical trials.”
Due to the lack of familiarity of PSP, CBD and MSA among many healthcare professionals, people often have significant delays in obtaining an accurate clinical diagnosis and specialized treatment plan, all while experiencing worsening of walking, vision, speech and swallowing difficulties and increased care needs.
“Our collaboration reflects the growing recognition that optimal care for individuals with PSP and related diseases requires an integrated approach that bridges both motor and cognitive expertise in neurology,” said Kimiko Domoto-Reilly, MD and Raima Amin, MD of the University of Washington. “We are honored to join the CurePSP network to contribute to a deeper understanding of these complex neurodegenerative conditions.”
Centers must reapply for designation every three years. For more information and a complete listing of CurePSP Centers of Care, visit www.psp.org/centers-of-care
About CurePSP:CurePSP is the leading nonprofit organization dedicated to the awareness, care and cure for three neurodegenerative diseases: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). As a catalyst for new treatments and a cure, CurePSP establishes important partnerships and funds critical research internationally. Through its advocacy and support efforts, CurePSP enhances education, care delivery and quality of life for people living with PSP, CBD and MSA and their families. Science, community and hope are at the heart of CurePSP's mission and all its services. CurePSP is a registered 501(c)(3) charity within the United States (EIN: 52-1704978).
Contact:Kristophe Diaz, PhDChief Executive Officer646-725-1453diaz@curepsp.org
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SOURCE CurePSP, Inc.
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